Information for users

All potential organisations and users will go through a data access request process.  This ensures they meet requirements in line with the Five Safes Framework. Importantly, this process will ensure involvement of public members in the decision-making process.

• Registration of an organisation and user
  Any organisations who wishes to request access to data in the SDE will have to sign a research organisation contract.  These organisations will be asked to vouch for the users that work for them.
  When individual users register with the SDE they will be asked to sign up to a set of terms and conditions.  
• Access request review
  When a user has been vouched for, they can submit an access request form. This form asks questions related to the request, the data required, the public interest and methodology. 
  Once the form is completed, the TVS SDE Management Team will review the request to assess if the request is achievable and feasible.
  Requests that are partially approved at this stage are reviewed by the Services and data Access Review Committee (SARC).  The SARC assess if the request is desirable and what potential benefits to patients, healthcare professionals, the health and care system, social care providers and society more broadly the request may deliver.
  The SARC ensure that the request is in line with the TVS SDE Purpose and in line with the NHS Values as set out in the NHS Constitution.
  The Committee is compromised of Public Members and Health & care Members.
• Data access for an agreed purpose
  If the request is approved, a data access agreement, signed by the organisation and the SDE, will set out: the details of the data set requested, the purpose the data will be used for, data protection arrangements and intellectual property terms.  

If you’re interested in learning more about the TVS SDE or would like to submit an access request, email our team at tvssde@ouh.nhs.uk.